My name is Michele DiPietro, thank you for visiting my website. I would like you to know about Reflex Sympathetic Dystrophy (RSD), the extremely painfull condition that I have been living with for fourteen years. I have included some information from various RSD websites, along with my personal experiences. Over the years I have visited so many sites looking for treatments and information that may help me, and wanted to share them with you. I hope that you will find the website informative and that it helps you understand about my condition and how it affects me and other people suffering with RSD.
As a kid I enjoyed all kinds of activities like, skiing, dancing, field hockey, and espcially soccer. But on March 9, 2002 my life changed dramatically. I hurt my foot playing indoor soccer and developed a rare condition called Reflex Sympathetic Dystrophy (RSD). At first my doctors thought I just sprained my ankle, but as time went on, the pain wasn’t going away, but kept getting worse. Ever since that day in March, I have been in constant pain. The RSD has spread throughout my body, and most of my days are spent in bed because the pain is so bad.
I was first diagnosed with RSD at the children’s hospital in Hartford, CT. The doctors there couldn’t understand all the pain that I was in. RSD is very rare and the doctors there thought RSD doesn’t spread. They informed my parents that there is no cure for RSD and that I had to learn to live with my pain.
My parents didn’t want to believe that I was never going to get better. They have brought me to several doctors around the country (Boston, New York, California,and Pennsylvania) searching for a treatment that will reduce my pain. Over the years I have tried all types of treatments and have been in many hospitals. We continue to search for a treatment that will help me. My pain has continued to worsen, and I now have total body RSD.
The McGill Pain Scale (which is talked about on this website) remains a useful instrument for doctors because it is reliable and consistent. Reflex Sympathetic Dystrophy (causalgia) has a score of 42 out of 50 on the McGill Pain.
RSD in the most painful chronic disease that is known.
Since there is no cure for RSD, most of my treatments are not covered by insurance because they are considered experimental. PLEASE explore my web site to learn about RSD and how you can help me
Please pray for a “Miracle for Michele”.
My sincere thanks,
A special thank you to my cousin Jimmy who designed my website and helped us get it up and running.